What is clubfoot?
Idiopathic clubfoot is a foot condition that typically affects otherwise healthy babies. Idiopathic means “cause unknown.” In a club foot, the entire foot is twisted “down and in,” to the point that it looks like the feet are upside down, with the soles pointed upward. In most cases, there is no known cause of idiopathic clubfoot deformity. However, some babies with clubfoot also have other serious associated syndromes, such as arthrogryposis, or spina bifida, or constriction band syndrome. In general, the “idiopathic” clubfeet are easier to treat than the “syndromic” clubfeet.
Clubfoot is one of the most common non-major birth defects. It affects approximately one in every 1,000 newborns. Every year in the United States alone, it is estimated that as many as 8,000 babies are born with the condition. Both feet will be affected in half of these children. Boys are more frequently affected than girls.
During infancy, clubfoot does not cause pain. In fact, a child who does not receive treatment will begin to stand and even walk at normal developmental stages. However, the child will walk on the outside border of the foot, or even on the top of the foot. Children who are not treated will eventually have severe functional disability. They will not be able to wear shoes, and the foot will eventually become painful, prohibiting participation in most sports and even certain forms of employment.
How do we treat clubfoot?
Traditionally, clubfoot had been treated with extensive open surgery. However, over the past 20 years, the Ponseti “Conservative” Method has become favored. Dr. John Herzenberg is one of the world’s leading experts on the Ponseti method for clubfoot treatment, and one of the first pediatric orthopedists outside of Ponseti’s home state of Iowa to start using Dr. Ponseti’s method. The Ponseti Method is a mostly non-surgical treatment for correcting clubfoot. It involves three phases:
- Cast Phase: Casts are applied weekly for 4 to 8 weeks
- Tenotomy Phase: This minor procedure to cut the Achilles tendon is performed in the clinic under local anesthesia.
- Bracing Phase: The child wears special shoes that are connected by a bar (Boots and Bar)
Our brochures (Information for Parents, Boots and Bar Stage, and Exercises for Your Child) contain complete information about each stage of treatment. This video may also help you understand the treatment process:
How long does it take to correct clubfoot with the Ponseti Method?
If a child starts treatment within a few weeks of birth, he or she will be completely done with treatment by 4-5 years of age. The initial casting phase takes approximately 3 months. Then the boots and bar are applied. The child wears them day and night for three months (from age 3 months to age 6 months). From age 6 months to when the child turns four or five years old, the child wears the boots and bar at nighttime only. For more information, please see our brochures (Information for Parents, Boots and Bar Stage, and Exercises for Your Child).
Does the Ponseti Method involve any surgery?
After the initial casting phase, most children with clubfoot undergo a minor office procedure in which the Achilles tendon is cut (tenotomy). This is done with local anesthesia. Parents are allowed to be present, to comfort the baby. When children are 2.5 years old or older, about 15% of the children may require an additional surgical procedure to help balance the strength of the foot muscles. This procedure is called an anterior tibialis tendon transfer.
Can clubfoot be treated with only surgery?
For decades, the long-standing medical solution has been extensive surgery (also called posteromedial release). Extensive surgery can cause scarring, weakness and stiffness. It also costs approximately four times more than the Ponseti Method. Dr. Herzenberg has made it his personal mission to reverse the long-standing practice of routine extensive surgery to treat clubfoot. Dr. Herzenberg decided to incorporate the Ponseti Method into his practice in 1998. He went from performing surgery on 95% of his patients with clubfoot (prior to 1998) to performing surgery on only 5% of his patients (since 1998).
If my child has clubfoot, how soon after birth should I bring my child in for an appointment?
It is not necessary to come to our Clubfoot Clinic immediately after being discharged from the hospital. Ideally, it is recommended that parents bring their child to our clinic one to two weeks after birth. However, we have successfully treated many children who come to us at age 3-8 months, after having unsuccessful treatment elsewhere.
I am an expectant mother and the ultrasound indicated a possible foot deformity. Can I schedule an appointment with Dr. Herzenberg before my child is born?
Yes, Dr. Herzenberg can meet with you to discuss options and explain the treatment.
Can the Ponseti Method be effective in treating older infants who have a clubfoot deformity?
Yes. Dr. Herzenberg conducted a study that looked at situations where he treated infants who underwent failed casting at other institutions or were older than 3 months. He found that the rate of success in older infants was similar to the rate of success in younger infants.
Can any doctor claim to use Ponseti’s method and how is a parent to know who is legitimate?
Anyone can theoretically make the claim that he or she is performing the Ponseti Method. Dr. Herzenberg has encountered many cases in which parents were told they were receiving the Ponseti Method, but in fact, the treating physician was making significant deviations from the strict Ponseti Method. These deviations usually result in less than satisfactory results. The Ponseti technique is characterized by long leg casts reapplied weekly. Parents should see positive change in the foot after just 3 or 4 casts are applied.
What research has been done on this technique and what do the results indicate?
Dr. Ponseti published his results many times, and his partner, Dr. Dietz has published Ponseti’s results with 30 years of follow-up. This is one of the best long-term outcome studies in the entire orthopedic literature. They found that 30 years after being treated, patients were functioning as well as patients who did not have clubfoot.
Dr. Herzenberg published a study in which he evaluated how kids were doing 5 to 9 years after he treated them with the Ponseti Method. He found that it was effective in correcting the deformity and that parents were very satisfied with the results.
Dr. Herzenberg also compared club feet treated with extensive surgery to those treated with the Ponseti Method by analyzing their X-rays and walk (gait). In this study, Dr. Herzenberg and the co-authors found that the Ponseti Method resulted in a superior outcome when compared with extensive surgery.
Dr. Herzenberg’s research findings regarding the success of the Ponseti Method have been published in the Journal of Pediatric Orthopaedics, Clinical Orthopaedics and Related Research, Journal of Children’s Orthopaedics and in Orthopedics Today. He has presented his clubfoot research at scientific meetings and as a visiting professor at numerous hospitals around the world. Dr. Herzenberg is regularly on the faculty of Ponseti Method courses in the USA and abroad.
How many infants has Dr. Herzenberg treated with the Ponseti Method?
Dr. Herzenberg has treated more than 300 babies with the Ponseti Method since 1998.
How did Dr. Herzenberg learn about the Ponseti Method?
Early in his medical career, Dr. Herzenberg remembers the frustration he felt as a pediatric orthopedic surgeon when dealing with clubfoot cases. During his training, he had been taught that extensive surgery was the only treatment that could correct this deformity. But he personally saw that the results of this treatment were often not very good. The operation was extremely invasive, and often the deformity would recur, leading to significant foot problems that frequently required even more surgery. He yearned to find a better way.
In 1997, Dr. Herzenberg found a book, “Congenital Clubfoot, Fundamentals of Treatment,” written by pediatric orthopedic surgeon, Ignacio Ponseti, MD, from Iowa City. Though Dr. Ponseti had developed and proven his method to be successful over 30 years ago, this book was not published until 1996.
Dr. Herzenberg spoke with colleagues who worked with Dr. Ponseti at the University of Iowa and was impressed by the fact that clubfoot in Iowa rarely required extensive surgery. He decided to learn and practice the Ponseti Method and kept in close contact with Dr. Ponseti and his team in Iowa for advice. In 1998, Dr. Herzenberg invited Dr. Ponseti to Baltimore, Maryland, to review the first group of babies treated under his care. Dr. Ponseti confirmed Dr. Herzenberg’s success and declared that this was the first time someone not directly trained by Dr. Ponseti had used his technique as it was meant to be done.
Why come to the International Center for Limb for Treatment of Clubfoot?
Dr. Herzenberg is one of the world’s leading experts on the Ponseti Method, a conservative, mostly non-surgical clubfoot treatment. International Center for Limb Lengthening patients benefit from our team-centered approach with world-renowned doctors and specialized physician assistants, nurses and physical therapists. We help patients with clubfoot achieve their best possible result.
Examples of Treatment
Handouts and Information
- International Center for Limb Lengthening Brochures
- Research articles that Dr. Herzenberg has written about the Ponseti Method
- “The Ponseti Method for Clubfoot: Correction Information for Parents”
This short guide for parents is provided by the Global HELP organization.
- NPR article featuring the Ponseti method and Dr. Herzenberg
- “Clubfoot: Ponseti Management”
This free book is intended for medical professionals and focuses on providing information about all aspects of managing clubfoot using the Ponseti method. Dr. Herzenberg contributed to this book to assist the Global HELP organization in providing health education using low-cost publication.
- “Interview with Dr. Herzenberg”
Dr. Herzenberg talks about how he learned about the Ponseti Method and how it has changed the lives of his patients in this MD Orthopaedics video.
- “How Does the Ponseti Method Work?”
Scientific Animations Without Borders (SAWBO) consulted with Dr. Herzenberg when they were creating this video.
The following testimonials are stories of hope for babies born with clubfoot and for parents who dream of cheering them on at baseball games and dance recitals. This is a story of how a little known technique called the Ponseti Method is making these dreams come true.
Amparo and Richard
Meet Amparo and Richard, from the Dominican Republic. When their local doctor recommended surgery to correct their son’s bilateral clubfoot, they hesitated, thinking there must be a less traumatic option available. They turned to the internet where they discovered a technique called the Ponseti Method. The method was a non-surgical technique developed by Spanish pediatric orthopedic surgeon, Ignacio Ponseti, MD, to correct clubfoot deformity. To their surprise, Dr. Ponseti, though in his late 80’s, was living in Iowa, USA, and was still practicing medicine. The parents made contact and explained their situation asking for advice. The doctor replied and advised against surgery, recommending that they visit with a doctor who practiced the Ponseti Method. In particular, he recommended Dr. John Herzenberg.
At that time, no orthopedists in the Dominican Republic practiced this method. The only solution for Richard and Amparo was to find a way to get to the United States despite the great financial sacrifices this would require. Fortunately, Richard had family on the east coast and driving distance from Dr. Herzenberg’s clinic. Family and relatives donated to the cause and in a few weeks, they were on a plane to their first consultation and Ponseti casting at Sinai Hospital.
Their first clinic visit was an end to this family’s search for a solution and a new beginning of hopes and dream for their child. When Herzenberg commented that, “it is my honor to be recommended by Dr. Ponseti,” they knew that they had journeyed to the right place.
Over the next weeks, Richard Jr.’s parents saw a dramatic difference in the position of their child’s feet. After a few weeks of casting, a tenotomy was performed and Richard was put in final casts for three more weeks. Once he was ready for shoes, the family was able to return to their home in the Dominican Republic.
Richard and Amparo shared they feel fortunate to have discovered the Ponseti Method just in time to avoid surgery. Two years later, their son was walking and running just like any other child his age that was born with normal feet.
When the family returned to Sinai Hospital for a two-year follow-up with Dr. Herzenberg, Richard Jr.’s feet were perfect. He had to wear his special shoes with the bar at night-time for another year, but there were no complaints. Richard was a very active toddler who loved to play and make his feet take him everywhere he wanted to go.
A Letter from Karen and Michael
Dear Dr. Herzenberg,
Thank you for the medical care you have given our child.
When our baby was first diagnosed with severe bilateral clubfoot we were not sure about her future – we read articles with diverse medical opinions for treatment, and patients showing a huge range of results. We were worried that she would have a lifetime of pain, the inability to walk normally, and the stares that a physical deformity brings on.
But now, with your treatment using the Ponseti method, she has beautiful, flexible feet, with no pain. Today we watched our nine-month-old daughter Alexandra pull herself up to a standing position and attempt to take her first steps. At this early age she has begun to try to walk. Her first steps are especially meaningful for us, given her obstacles. Tonight, we put on her special shoes, read to her, and watched her fall asleep. We are proud parents, grateful to God for giving us this child and to you for giving her a quality of life where she can be happy and able to reach her full potential.
Again, we thank you.
Karen & Michael