We Are Open and Safe! Click here for our current visitor policies (subject to change during the COVID-19 pandemic).

Fibular Hemimelia: A Family’s Journey

Marisa and Tim Haney talk about discovering during an ultrasound that their daughter Emma had fibular hemimelia. That started a fact-finding mission that was often discouraging, as amputation seemed to be the recommended treatment. Marisa’s mom turned to Google and found a blog that mentioned expert orthopedic surgeons Dr. John Herzenberg and Dr. Shawn Standard. That led the Haney family to come to the International Center for Limb Lengthening so Emma’s leg could be saved.