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Fibular Hemimelia: A Family’s Journey

Marisa and Tim Haney talk about discovering during an ultrasound that their daughter Emma had fibular hemimelia. That started a fact-finding mission that was often discouraging, as amputation seemed to be the recommended treatment. Marisa’s mom turned to Google and found a blog that mentioned expert orthopedic surgeons Dr. John Herzenberg and Dr. Shawn Standard. That led the Haney family to come to the International Center for Limb Lengthening so Emma’s leg could be saved.

Videos

Introduction to Parent PerspectivesIntroduction to Parent Perspectives
Text on a slide from a video discussing who needs a shoe liftParent Perspectives: The Art of Shoe Lifts
Dr. John Herzenberg talking about the specialized teams for limb lengthening and reconstruction at the Rubin Institute for Advanced OrthopedicsSpecialized Teams for Limb Lengthening and Reconstruction at the Rubin Institute
Screenshot of a video about treatment at the Rubin Institute for Advanced OrthopedicsTreatment at the Rubin Institute: A Patient’s Perspective
Dr. John Herzenberg explaining how PRECICE internal lengthening worksThe Precice™ Internal Lengthening Nail
Picture from the video of research program coordinator holding the external remote control of a PRECICE internal lengthening system by the hospital bed of a male patientThe Precice™ Limb Lengthening System Demonstrated
Dr. John Herzenberg walking with a clubfoot patient in the International Center for Limb Lengthening clinicMaking A Difference: Caring for Clubfoot at the Sinai Hospital of Baltimore
Mother and father discussing how their son was treated for clubfoot at the International Center for Limb LengtheningA Family Experiences Sinai Hospital’s Clubfoot Program
Dr. John Herzenberg discussing how he uses the Ponseti Method to treat patients with Clubfoot at the International Center for Limb LengtheningThe Ponseti Method for Clubfoot – Dr. John E. Herzenberg
Screenshot of a video that demonstrates how the Ponseti Method is used to treat ClubfootCorrecting Clubfoot: The Ponseti Method
CJ and his family discussing his treatment for congenital pseudarthrosis of the tibia at the International Center for Limb LengtheningCongenital Pseudarthrosis of the Tibia: CJ’s Story
Dr. Shawn Standard examining x-rays of a Dwarfism patient at the International Center for Limb LengtheningLimb Lengthening for Dwarfism
Male patient with a limb length discrepancy discussing how he was treated at the International Center for Limb LengtheningLimb Length Discrepancy: Cole’s Story
Illustration of how bone lengthening works at the International Center for Limb LengtheningHow Does Bone Lengthening Work?
Dr. Shawn Standard discussing how patients with Fibular Hemimelia and Congenital Femoral Deficiency are treated at the International Center for Limb LengtheningFibular Hemimelia and Congenital Femoral Deficiency
Mother and father discussing their journey to seek treatment for their daughter who has fibular hemimeliaFibular Hemimelia: A Family’s Journey
Karie shares her leg-straightening storyLeg-Straightening: A Patient’s Story
Picture from video of Dr. Janet Conway checking a male patient’s legNonunions
Illustration of how a bone infection is treated at the International Center for Limb LengtheningOsteomyelitis (Bone Infection) Treatment
Rachael, a patient with Perthes disease, discusses her treatment at the International Center for Limb LengtheningPerthes: Rachael’s Story
Jackson, a patient with Perthes Disease, who was treated at the International Center for Limb LengtheningPerthes: Jackson’s Story
Radial-Club-Hand-Kacper-Story-Video-Thumbnail-no-buttonRadial Club Hand: Kacper’s Treatment Journey from Poland
Dr. Shawn Standard checking the hand of a boy patient who is wearing an external fixator on his arm in the International Center for Limb Lengthening clinicRadial Club Hand: A Patient’s Story
Dr. John Herzenberg with a patient he treated during an international medical missionLifeBridge Health Around the World: Orthopedic Medical Missions
Anil Bhave, PT, performing physical therapy on a patient at the Wasserman Gait Laboratory at the Rubin Institute for Advanced OrthopedicsThe Wasserman Gait Laboratory at the Rubin Institute for Advanced Orthopedics
The Hackerman Patz House at Sinai HospitalThe Hackerman-Patz House at Sinai Hospital
Screenshot of a video tutorial demonstrating how to use the Multiplier appMultiplier App in Action
Screenshot of a video tutorial demonstrating how to use the Bone Ninja app for deformity correctionBone Ninja App Tutorial (Version 4.0)
Screenshot of a video tutorial demonstrating how to use the Bone Ninja app for deformity correctionIntroduction to Bone Ninja App Part I
Screenshot of a video tutorial demonstrating how to use the Bone Ninja app for deformity correctionIntroduction to Bone Ninja App Part II
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