Congenital Pseudarthrosis of the Tibia Maryland Dr. Standard
CJ and his family discussing his treatment for congenital pseudarthrosis of the tibia at the International Center for Limb Lengthening

This video tells CJ’s story. He broke his leg when he was only 2 months old. It was discovered that he had a condition called congenital pseudarthrosis of the tibia, a shin bone fracture in children that will not heal. His parents credit the Rubin Institute with saving CJ’s leg. To express their appreciation, they give back philanthropically to help ensure other children get the treatment that they need.

Since this video was made, CJ has had additional surgeries to lengthen his affected leg as he grew taller over the years. When asked how CJ’s life has been changed by being treated at the International Center for Limb Lengthening, his mother Whitney responds, “CJ’s leg would not have ever healed properly, causing [him] problems [with] walking and being a normal, active child. He is a very active and successful athlete now, and we are very grateful.”

She continues, “The Rubin Institute has gone above and beyond to make us feel confident in their procedures and comfortable as we go through CJ’s care. We have encouraged the Rubin Institute to share our information with other potential patients. Sometimes, other patients hear their best option is amputation. We have always been open to talking to anyone about our positive, miraculous outcome. We are so grateful for not only the high level of care of the Rubin Institute, but also for the comfort and personal attention they give to everyone.”

These more recent photos show CJ (in uniform number 14) playing lacrosse:

  • CJ in uniform number 14 with a lacrosse stick playing defense against a player on the opposing team near the goal on the playing field
  • CJ in number 14 uniform running with a lacrosse stick opposite a player on the opposing team on the playing field